You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Deletion 5q35, look for clinical trials, and connect with others living with it — all in one place.
Open the full Deletion 5q35 hub →Deletion 5q35 is a rare condition. Also known as Del (5)(q35), Del (5)(qter), Distal 5q deletion, Monosomy 5q35, Telomeric deletion 5q. Tomeko brings together the specialists, research, clinical trials, treatments and community for Deletion 5q35 so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1627 · ICD-10 Q93.5 · GARD 0018730
Start by learning the basics from an authoritative source, find a specialist or center that sees Deletion 5q35, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Deletion 5q35, filtered to your area.
Tomeko shows live, recruiting studies for Deletion 5q35 from ClinicalTrials.gov on the hub.