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CREST syndrome

Just diagnosed with CREST syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees CREST syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full CREST syndrome hub →

Overview

CREST syndrome is a rare condition. Also known as Calcinosis-Raynaud phenomenon-esophageal involvement-sclerodactyly-telangiectasia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for CREST syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:90290 · ICD-10 M34.1 · GARD 0025139

Find care for CREST syndrome

Authoritative references for CREST syndrome

Common questions

I was just diagnosed with CREST syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees CREST syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for CREST syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat CREST syndrome, filtered to your area.

Are there clinical trials for CREST syndrome?

Tomeko shows live, recruiting studies for CREST syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com