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Craniofrontonasal syndrome

Just diagnosed with Craniofrontonasal syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Craniofrontonasal syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Craniofrontonasal syndrome hub →

Overview

Craniofrontonasal syndrome is a rare condition. Also known as CFND, CFNS, Craniofrontonasal syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Craniofrontonasal syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:1520 · OMIM 304110 · ICD-10 Q87.1 · GARD 0001578

Find care for Craniofrontonasal syndrome

Authoritative references for Craniofrontonasal syndrome

Common questions

I was just diagnosed with Craniofrontonasal syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Craniofrontonasal syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Craniofrontonasal syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Craniofrontonasal syndrome, filtered to your area.

Are there clinical trials for Craniofrontonasal syndrome?

Tomeko shows live, recruiting studies for Craniofrontonasal syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com