You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Craniofacial microsomia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Craniofacial microsomia hub →Craniofacial microsomia is a rare condition. Also known as OAVS, OAV spectrum, Oculoauriculovertebral spectrum, Oculo-auriculo-vertebral spectrum. Tomeko brings together the specialists, research, clinical trials, treatments and community for Craniofacial microsomia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:141132 · OMIM 164210 · ICD-10 Q87.0 · GARD 0012074
Start by learning the basics from an authoritative source, find a specialist or center that sees Craniofacial microsomia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Craniofacial microsomia, filtered to your area.
Tomeko shows live, recruiting studies for Craniofacial microsomia from ClinicalTrials.gov on the hub.