You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Cowden syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Cowden syndrome hub →Cowden syndrome is a rare condition. Also known as Cowden disease, Multiple hamartoma syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Cowden syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:201 · OMIM 158350, 615107, 615108 · ICD-10 Q85.8 · GARD 0006202
Start by learning the basics from an authoritative source, find a specialist or center that sees Cowden syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Cowden syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Cowden syndrome from ClinicalTrials.gov on the hub.