You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Cooks syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Cooks syndrome hub →Cooks syndrome is a rare condition. Also known as Anonychia-onychodystrophy with hypoplasia or absence of distal phalanges syndrome, ODP. Tomeko brings together the specialists, research, clinical trials, treatments and community for Cooks syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1487 · OMIM 106995 · ICD-10 Q84.6 · GARD 0004083
Start by learning the basics from an authoritative source, find a specialist or center that sees Cooks syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Cooks syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Cooks syndrome from ClinicalTrials.gov on the hub.