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Congenital short bowel syndrome

Just diagnosed with Congenital short bowel syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Congenital short bowel syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Congenital short bowel syndrome hub →

Overview

Congenital short bowel syndrome is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Congenital short bowel syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:2301 · OMIM 300048, 615237 · ICD-10 Q43.8 · GARD 0016592

Find care for Congenital short bowel syndrome

Authoritative references for Congenital short bowel syndrome

Common questions

I was just diagnosed with Congenital short bowel syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Congenital short bowel syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Congenital short bowel syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Congenital short bowel syndrome, filtered to your area.

Are there clinical trials for Congenital short bowel syndrome?

Tomeko shows live, recruiting studies for Congenital short bowel syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com