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Congenital muscular dystrophy 1B

Just diagnosed with Congenital muscular dystrophy 1B?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Congenital muscular dystrophy 1B, look for clinical trials, and connect with others living with it — all in one place.

Open the full Congenital muscular dystrophy 1B hub →

Overview

Congenital muscular dystrophy 1B is a rare condition. Also known as CMD1B, MDC1B. Tomeko brings together the specialists, research, clinical trials, treatments and community for Congenital muscular dystrophy 1B so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:98893 · OMIM 604801 · ICD-10 G71.2 · GARD 0012586

Find care for Congenital muscular dystrophy 1B

Authoritative references for Congenital muscular dystrophy 1B

Common questions

I was just diagnosed with Congenital muscular dystrophy 1B — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Congenital muscular dystrophy 1B, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Congenital muscular dystrophy 1B?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Congenital muscular dystrophy 1B, filtered to your area.

Are there clinical trials for Congenital muscular dystrophy 1B?

Tomeko shows live, recruiting studies for Congenital muscular dystrophy 1B from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com