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Congenital macroglossia

Just diagnosed with Congenital macroglossia?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Congenital macroglossia, look for clinical trials, and connect with others living with it — all in one place.

Open the full Congenital macroglossia hub →

Overview

Congenital macroglossia is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Congenital macroglossia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:2430 · OMIM 153630 · ICD-10 Q38.2 · GARD 0016599

Find care for Congenital macroglossia

Authoritative references for Congenital macroglossia

Common questions

I was just diagnosed with Congenital macroglossia — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Congenital macroglossia, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Congenital macroglossia?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Congenital macroglossia, filtered to your area.

Are there clinical trials for Congenital macroglossia?

Tomeko shows live, recruiting studies for Congenital macroglossia from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com