You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Congenital insensitivity to pain with severe intellectual disability, look for clinical trials, and connect with others living with it — all in one place.
Open the full Congenital insensitivity to pain with severe intellectual disability hub →Congenital insensitivity to pain with severe intellectual disability is a rare condition. Also known as Congenital absence of pain with severe intellectual disability, Congenital analgesia with severe intellectual disability, Congenital insensitivity to pain with preserved temperature sensation, Congenital insensitivity to pain with severe non-progressive cognitive delay. Tomeko brings together the specialists, research, clinical trials, treatments and community for Congenital insensitivity to pain with severe intellectual disability so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:453510 · ICD-10 G60.8 · GARD 0021890
Start by learning the basics from an authoritative source, find a specialist or center that sees Congenital insensitivity to pain with severe intellectual disability, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Congenital insensitivity to pain with severe intellectual disability, filtered to your area.
Tomeko shows live, recruiting studies for Congenital insensitivity to pain with severe intellectual disability from ClinicalTrials.gov on the hub.