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Congenital bilateral perisylvian syndrome

Just diagnosed with Congenital bilateral perisylvian syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Congenital bilateral perisylvian syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Congenital bilateral perisylvian syndrome hub →

Overview

Congenital bilateral perisylvian syndrome is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Congenital bilateral perisylvian syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:98889 · OMIM 300388, 615752, 616531 · ICD-10 Q04.3 · GARD 0006011

Find care for Congenital bilateral perisylvian syndrome

Authoritative references for Congenital bilateral perisylvian syndrome

Common questions

I was just diagnosed with Congenital bilateral perisylvian syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Congenital bilateral perisylvian syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Congenital bilateral perisylvian syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Congenital bilateral perisylvian syndrome, filtered to your area.

Are there clinical trials for Congenital bilateral perisylvian syndrome?

Tomeko shows live, recruiting studies for Congenital bilateral perisylvian syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com