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Complete trisomy 13 syndrome

Just diagnosed with Complete trisomy 13 syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Complete trisomy 13 syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Complete trisomy 13 syndrome hub →

Overview

Complete trisomy 13 syndrome is a rare condition. Also known as Patau syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Complete trisomy 13 syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:3378 · ICD-10 Q91.4, Q91.5, Q91.6 · GARD 0007341

Find care for Complete trisomy 13 syndrome

Authoritative references for Complete trisomy 13 syndrome

Common questions

I was just diagnosed with Complete trisomy 13 syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Complete trisomy 13 syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Complete trisomy 13 syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Complete trisomy 13 syndrome, filtered to your area.

Are there clinical trials for Complete trisomy 13 syndrome?

Tomeko shows live, recruiting studies for Complete trisomy 13 syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com