tomeko

Cohen syndrome

Just diagnosed with Cohen syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Cohen syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Cohen syndrome hub →

Overview

Cohen syndrome is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Cohen syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:193 · OMIM 216550 · ICD-10 Q87.8 · GARD 0006126

Find care for Cohen syndrome

Authoritative references for Cohen syndrome

Common questions

I was just diagnosed with Cohen syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Cohen syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Cohen syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Cohen syndrome, filtered to your area.

Are there clinical trials for Cohen syndrome?

Tomeko shows live, recruiting studies for Cohen syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com