You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Coats plus syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Coats plus syndrome hub →Coats plus syndrome is a rare condition. Also known as CRMCC, Cerebroretinal microangiopathy with calcifications and cysts. Tomeko brings together the specialists, research, clinical trials, treatments and community for Coats plus syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:313838 · OMIM 612199, 617341 · ICD-10 H35.0 · GARD 0017412
Start by learning the basics from an authoritative source, find a specialist or center that sees Coats plus syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Coats plus syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Coats plus syndrome from ClinicalTrials.gov on the hub.