You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Coats disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Coats disease hub →Coats disease is a rare condition. Also known as Congenital retinal telangiectasia, Leber miliary aneurysm. Tomeko brings together the specialists, research, clinical trials, treatments and community for Coats disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:190 · OMIM 300216 · ICD-10 H35.0 · GARD 0006121
Start by learning the basics from an authoritative source, find a specialist or center that sees Coats disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Coats disease, filtered to your area.
Tomeko shows live, recruiting studies for Coats disease from ClinicalTrials.gov on the hub.