You are not alone. Here is where to start: learn the basics, find a specialist or center that sees CLOVES syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full CLOVES syndrome hub →CLOVES syndrome is a rare condition. Also known as Congenital lipomatous overgrowth-vascular malformation-epidermal nevi-skeletal anomaly syndrome, Congenital lipomatous overgrowth-vascular malformation-epidermal nevi-spinal anomaly syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for CLOVES syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:140944 · OMIM 612918 · ICD-10 Q87.3 · GARD 0010939
Start by learning the basics from an authoritative source, find a specialist or center that sees CLOVES syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat CLOVES syndrome, filtered to your area.
Tomeko shows live, recruiting studies for CLOVES syndrome from ClinicalTrials.gov on the hub.