You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Cloacal exstrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Cloacal exstrophy hub →Cloacal exstrophy is a rare condition. Also known as OEIS complex, Omphalocele-cloacal exstrophy-imperforate anus-spinal defect syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Cloacal exstrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:93929 · OMIM 258040 · ICD-10 Q64.1 · GARD 0004080
Start by learning the basics from an authoritative source, find a specialist or center that sees Cloacal exstrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Cloacal exstrophy, filtered to your area.
Tomeko shows live, recruiting studies for Cloacal exstrophy from ClinicalTrials.gov on the hub.