You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Cleidorhizomelic syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Cleidorhizomelic syndrome hub →Cleidorhizomelic syndrome is a rare condition. Also known as Rhizomelic shortness with clavicular defect, Wallis-Zieff-Goldblatt syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Cleidorhizomelic syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1453 · OMIM 119650 · ICD-10 Q77.8 · GARD 0005532
Start by learning the basics from an authoritative source, find a specialist or center that sees Cleidorhizomelic syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Cleidorhizomelic syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Cleidorhizomelic syndrome from ClinicalTrials.gov on the hub.