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Chromosome 9p deletion syndrome

Just diagnosed with Chromosome 9p deletion syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Chromosome 9p deletion syndrome, look for clinical trials, and connect with others living with it — all in one place.

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Overview

Chromosome 9p deletion syndrome is a rare condition. Also known as 9p deletion syndrome, 9p- syndrome, Alfi syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Chromosome 9p deletion syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:261112 · OMIM 158170 · ICD-10 Q93.5 · GARD 0003773

Find care for Chromosome 9p deletion syndrome

Authoritative references for Chromosome 9p deletion syndrome

Common questions

I was just diagnosed with Chromosome 9p deletion syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Chromosome 9p deletion syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Chromosome 9p deletion syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Chromosome 9p deletion syndrome, filtered to your area.

Are there clinical trials for Chromosome 9p deletion syndrome?

Tomeko shows live, recruiting studies for Chromosome 9p deletion syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com