You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Choanal atresia with radial ray hypoplasia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Choanal atresia with radial ray hypoplasia hub →Choanal atresia with radial ray hypoplasia is a rare condition. Also known as Goldblatt-Viljoen syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Choanal atresia with radial ray hypoplasia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3026 · OMIM 179270 · ICD-10 Q87.8 · GARD 0004627
Start by learning the basics from an authoritative source, find a specialist or center that sees Choanal atresia with radial ray hypoplasia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Choanal atresia with radial ray hypoplasia, filtered to your area.
Tomeko shows live, recruiting studies for Choanal atresia with radial ray hypoplasia from ClinicalTrials.gov on the hub.