You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Child syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Child syndrome hub →Child syndrome is a rare condition. Also known as CHILD nevus, Congenital hemidysplasia with ichthyosiform erythroderma and limb defects. Tomeko brings together the specialists, research, clinical trials, treatments and community for Child syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:139 · OMIM 308050 · ICD-10 Q87.8 · GARD 0006039
Start by learning the basics from an authoritative source, find a specialist or center that sees Child syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Child syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Child syndrome from ClinicalTrials.gov on the hub.