You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Caudal duplication, look for clinical trials, and connect with others living with it — all in one place.
Open the full Caudal duplication hub →Caudal duplication is a rare condition. Also known as Dipygus, Split notochord syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Caudal duplication so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1756 · OMIM 607864 · ICD-10 Q87.8 · GARD 0001164
Start by learning the basics from an authoritative source, find a specialist or center that sees Caudal duplication, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Caudal duplication, filtered to your area.
Tomeko shows live, recruiting studies for Caudal duplication from ClinicalTrials.gov on the hub.