You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Castleman disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Castleman disease hub →Castleman disease is a rare condition. Also known as Angiofollicular ganglionic hyperplasia, Angiofollicular lymph hyperplasia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Castleman disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:160 · OMIM 148000 · ICD-10 D47.7 · GARD 0012656
Start by learning the basics from an authoritative source, find a specialist or center that sees Castleman disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Castleman disease, filtered to your area.
Tomeko shows live, recruiting studies for Castleman disease from ClinicalTrials.gov on the hub.