You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Carney complex, look for clinical trials, and connect with others living with it — all in one place.
Open the full Carney complex hub →Carney complex is a rare condition. Also known as Carney syndrome, Myxoma-spotty pigmentation-endocrine overactivity syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Carney complex so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1359 · OMIM 160980, 605244, 610489 · ICD-10 D44.8 · GARD 0001119
Start by learning the basics from an authoritative source, find a specialist or center that sees Carney complex, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Carney complex, filtered to your area.
Tomeko shows live, recruiting studies for Carney complex from ClinicalTrials.gov on the hub.