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CARASIL syndrome

Just diagnosed with CARASIL syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees CARASIL syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full CARASIL syndrome hub →

Overview

CARASIL syndrome is a rare condition. Also known as CARASIL, Maeda syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for CARASIL syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:199354 · OMIM 600142 · ICD-10 I67.8 · GARD 0010424

Find care for CARASIL syndrome

Authoritative references for CARASIL syndrome

Common questions

I was just diagnosed with CARASIL syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees CARASIL syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for CARASIL syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat CARASIL syndrome, filtered to your area.

Are there clinical trials for CARASIL syndrome?

Tomeko shows live, recruiting studies for CARASIL syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com