You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Capillary leak syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Capillary leak syndrome hub →Capillary leak syndrome is a rare condition. Also known as Capillary hyperpermeability syndrome, Capillary leak syndrome, Clarkson disease, Idiopathic capillary leak syndrome, SCLS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Capillary leak syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:188 · ICD-10 I78.8 · GARD 0001084
Start by learning the basics from an authoritative source, find a specialist or center that sees Capillary leak syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Capillary leak syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Capillary leak syndrome from ClinicalTrials.gov on the hub.