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Brooke-Spiegler syndrome

Just diagnosed with Brooke-Spiegler syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Brooke-Spiegler syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Brooke-Spiegler syndrome hub →

Overview

Brooke-Spiegler syndrome is a rare condition. Also known as CYLD cutaneous syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Brooke-Spiegler syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:79493 · OMIM 132700, 601606, 605041 · ICD-10 D23.4, D23.5 · GARD 0010179

Find care for Brooke-Spiegler syndrome

Authoritative references for Brooke-Spiegler syndrome

Common questions

I was just diagnosed with Brooke-Spiegler syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Brooke-Spiegler syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Brooke-Spiegler syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Brooke-Spiegler syndrome, filtered to your area.

Are there clinical trials for Brooke-Spiegler syndrome?

Tomeko shows live, recruiting studies for Brooke-Spiegler syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com