You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Brittle cornea syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Brittle cornea syndrome hub →Brittle cornea syndrome is a rare condition. Also known as Ehlers-Danlos syndrome type 6B. Tomeko brings together the specialists, research, clinical trials, treatments and community for Brittle cornea syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:90354 · OMIM 229200, 614170 · ICD-10 Q79.6 · GARD 0001019
Start by learning the basics from an authoritative source, find a specialist or center that sees Brittle cornea syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Brittle cornea syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Brittle cornea syndrome from ClinicalTrials.gov on the hub.