You are not alone. Here is where to start: learn the basics, find a specialist or center that sees BNAR syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full BNAR syndrome hub →BNAR syndrome is a rare condition. Also known as Bifid nose with or without anorectal and renal anomalies. Tomeko brings together the specialists, research, clinical trials, treatments and community for BNAR syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:217266 · OMIM 608980 · ICD-10 Q87.8 · GARD 0010595
Start by learning the basics from an authoritative source, find a specialist or center that sees BNAR syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat BNAR syndrome, filtered to your area.
Tomeko shows live, recruiting studies for BNAR syndrome from ClinicalTrials.gov on the hub.