You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Bladder exstrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Bladder exstrophy hub →Bladder exstrophy is a rare condition. Also known as Classic exstrophy of the bladder. Tomeko brings together the specialists, research, clinical trials, treatments and community for Bladder exstrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:93930 · OMIM 600057 · ICD-10 Q64.1 · GARD 0006398
Start by learning the basics from an authoritative source, find a specialist or center that sees Bladder exstrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Bladder exstrophy, filtered to your area.
Tomeko shows live, recruiting studies for Bladder exstrophy from ClinicalTrials.gov on the hub.