You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Beta-thalassemia major, look for clinical trials, and connect with others living with it — all in one place.
Open the full Beta-thalassemia major hub →Beta-thalassemia major is a rare condition. Also known as Beta transfusion dependent thalassemia, Beta-TDT, Cooley anemia, Mediterranean anemia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Beta-thalassemia major so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:231214 · OMIM 613985 · ICD-10 D56.1 · GARD 0017162
Start by learning the basics from an authoritative source, find a specialist or center that sees Beta-thalassemia major, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Beta-thalassemia major, filtered to your area.
Tomeko shows live, recruiting studies for Beta-thalassemia major from ClinicalTrials.gov on the hub.