You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Benign paroxysmal tonic upgaze of childhood with ataxia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Benign paroxysmal tonic upgaze of childhood with ataxia hub →Benign paroxysmal tonic upgaze of childhood with ataxia is a rare condition. Also known as Ouvrier-Billson syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Benign paroxysmal tonic upgaze of childhood with ataxia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1179 · OMIM 168885 · ICD-10 G96.8 · GARD 0004176
Start by learning the basics from an authoritative source, find a specialist or center that sees Benign paroxysmal tonic upgaze of childhood with ataxia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Benign paroxysmal tonic upgaze of childhood with ataxia, filtered to your area.
Tomeko shows live, recruiting studies for Benign paroxysmal tonic upgaze of childhood with ataxia from ClinicalTrials.gov on the hub.