You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Basan syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Basan syndrome hub →Basan syndrome is a rare condition. Also known as Absence of dermatoglyphics-congenital milia syndrome, Baird syndrome, Basan-Baird syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Basan syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1658 · OMIM 129200 · ICD-10 Q82.8 · GARD 0002336
Start by learning the basics from an authoritative source, find a specialist or center that sees Basan syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Basan syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Basan syndrome from ClinicalTrials.gov on the hub.