You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Bannayan-Riley-Ruvalcaba syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Bannayan-Riley-Ruvalcaba syndrome hub →Bannayan-Riley-Ruvalcaba syndrome is a rare condition. Also known as BRRS, Myhre-Riley-Smith syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Bannayan-Riley-Ruvalcaba syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:109 · OMIM 158350 · ICD-10 Q87.8 · GARD 0005887
Start by learning the basics from an authoritative source, find a specialist or center that sees Bannayan-Riley-Ruvalcaba syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Bannayan-Riley-Ruvalcaba syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Bannayan-Riley-Ruvalcaba syndrome from ClinicalTrials.gov on the hub.