You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis, look for clinical trials, and connect with others living with it — all in one place.
Open the full Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis hub →Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis is a rare condition. Also known as PKDTS, TSC2/PKD1 contiguous gene syndrome, Tuberous sclerosis/polycystic kidney disease contiguous gene syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:88924 · OMIM 600273 · ICD-10 Q61.2 · GARD 0009481
Start by learning the basics from an authoritative source, find a specialist or center that sees Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis, filtered to your area.
Tomeko shows live, recruiting studies for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis from ClinicalTrials.gov on the hub.