You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Atypical pantothenate kinase-associated neurodegeneration, look for clinical trials, and connect with others living with it — all in one place.
Open the full Atypical pantothenate kinase-associated neurodegeneration hub →Atypical pantothenate kinase-associated neurodegeneration is a rare condition. Also known as NBIA1, atypical form, Neurodegeneration with brain iron accumulation type 1, atypical form, PKAN, atypical form. Tomeko brings together the specialists, research, clinical trials, treatments and community for Atypical pantothenate kinase-associated neurodegeneration so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:216873 · OMIM 234200 · ICD-10 G23.0 · GARD 0017115
Start by learning the basics from an authoritative source, find a specialist or center that sees Atypical pantothenate kinase-associated neurodegeneration, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Atypical pantothenate kinase-associated neurodegeneration, filtered to your area.
Tomeko shows live, recruiting studies for Atypical pantothenate kinase-associated neurodegeneration from ClinicalTrials.gov on the hub.