You are not alone. Here is where to start: learn the basics, find a specialist or center that sees ANE syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full ANE syndrome hub →ANE syndrome is a rare condition. Also known as Alopecia-progressive neurological defect-endocrinopathy syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for ANE syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:157954 · OMIM 612079 · ICD-10 E23.0 · GARD 0016987
Start by learning the basics from an authoritative source, find a specialist or center that sees ANE syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat ANE syndrome, filtered to your area.
Tomeko shows live, recruiting studies for ANE syndrome from ClinicalTrials.gov on the hub.