You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Andersen Tawil syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Andersen Tawil syndrome hub →Andersen Tawil syndrome is a rare condition. Also known as Andersen syndrome, LQT7, Long QT syndrome type 7. Tomeko brings together the specialists, research, clinical trials, treatments and community for Andersen Tawil syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:37553 · OMIM 170390 · ICD-10 G72.3 · GARD 0009453
Start by learning the basics from an authoritative source, find a specialist or center that sees Andersen Tawil syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Andersen Tawil syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Andersen Tawil syndrome from ClinicalTrials.gov on the hub.