You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Amniotic band syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Amniotic band syndrome hub →Amniotic band syndrome is a rare condition. Also known as ABS, Amniotic band sequence, Congenital constriction ring syndrome, Congenital ring constrictions, Constriction band syndrome, Streeter dysplasia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Amniotic band syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:295000 · OMIM 217100 · ICD-10 Q79.8 · GARD 0000429
Start by learning the basics from an authoritative source, find a specialist or center that sees Amniotic band syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Amniotic band syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Amniotic band syndrome from ClinicalTrials.gov on the hub.