You are not alone. Here is where to start: learn the basics, find a specialist or center that sees ALys amyloidosis, look for clinical trials, and connect with others living with it — all in one place.
Open the full ALys amyloidosis hub →ALys amyloidosis is a rare condition. Also known as Familial amyloid nephropathy due to lysozyme variant, Familial renal amyloidosis due to lysozyme variant, Hereditary amyloid nephropathy due to lysozyme variant, Hereditary renal amyloidosis due to lysozyme variant, Lysozyme amyloidosis. Tomeko brings together the specialists, research, clinical trials, treatments and community for ALys amyloidosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:93561 · OMIM 105200 · ICD-10 E85.0 · GARD 0019225
Start by learning the basics from an authoritative source, find a specialist or center that sees ALys amyloidosis, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat ALys amyloidosis, filtered to your area.
Tomeko shows live, recruiting studies for ALys amyloidosis from ClinicalTrials.gov on the hub.