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Alport syndrome

Just diagnosed with Alport syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Alport syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Alport syndrome hub →

Overview

Alport syndrome is a rare condition. Also known as Alport deafness-nephropathy, Alport hearing loss-nephropathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Alport syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:63 · OMIM 104200, 203780, 301050 · ICD-10 Q87.8 · GARD 0005785

Find care for Alport syndrome

Patient organizations for Alport syndrome

Authoritative references for Alport syndrome

Common questions

I was just diagnosed with Alport syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Alport syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Alport syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Alport syndrome, filtered to your area.

Are there clinical trials for Alport syndrome?

Tomeko shows live, recruiting studies for Alport syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com