You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Alopecia universalis congenita, look for clinical trials, and connect with others living with it — all in one place.
Open the full Alopecia universalis congenita hub →Alopecia universalis congenita is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Alopecia universalis congenita so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:701 · OMIM 104000, 203655, 610753 · ICD-10 L63.1 · GARD 0000614
Start by learning the basics from an authoritative source, find a specialist or center that sees Alopecia universalis congenita, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Alopecia universalis congenita, filtered to your area.
Tomeko shows live, recruiting studies for Alopecia universalis congenita from ClinicalTrials.gov on the hub.