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Alexander disease type I

Just diagnosed with Alexander disease type I?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Alexander disease type I, look for clinical trials, and connect with others living with it — all in one place.

Open the full Alexander disease type I hub →

Overview

Alexander disease type I is a rare condition. Also known as AxD type I. Tomeko brings together the specialists, research, clinical trials, treatments and community for Alexander disease type I so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:363717 · OMIM 203450 · ICD-10 G93.8 · GARD 0017572

Find care for Alexander disease type I

Authoritative references for Alexander disease type I

Common questions

I was just diagnosed with Alexander disease type I — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Alexander disease type I, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Alexander disease type I?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Alexander disease type I, filtered to your area.

Are there clinical trials for Alexander disease type I?

Tomeko shows live, recruiting studies for Alexander disease type I from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com