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Alexander disease

Just diagnosed with Alexander disease?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Alexander disease, look for clinical trials, and connect with others living with it — all in one place.

Open the full Alexander disease hub →

Overview

Alexander disease is a rare condition. Also known as AxD. Tomeko brings together the specialists, research, clinical trials, treatments and community for Alexander disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:58 · OMIM 203450 · ICD-10 G93.8 · GARD 0005774

Find care for Alexander disease

Authoritative references for Alexander disease

Common questions

I was just diagnosed with Alexander disease — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Alexander disease, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Alexander disease?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Alexander disease, filtered to your area.

Are there clinical trials for Alexander disease?

Tomeko shows live, recruiting studies for Alexander disease from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com