You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Aganglionic megacolon, look for clinical trials, and connect with others living with it — all in one place.
Open the full Aganglionic megacolon hub →Aganglionic megacolon is a rare condition. Also known as Aganglionic megacolon, Colonic aganglionosis, Congenital intestinal aganglionosis, HSCR. Tomeko brings together the specialists, research, clinical trials, treatments and community for Aganglionic megacolon so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:388 · OMIM 142623, 600155, 600156 · ICD-10 Q43.1 · GARD 0006660
Start by learning the basics from an authoritative source, find a specialist or center that sees Aganglionic megacolon, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Aganglionic megacolon, filtered to your area.
Tomeko shows live, recruiting studies for Aganglionic megacolon from ClinicalTrials.gov on the hub.