You are not alone. Here is where to start: learn the basics, find a specialist or center that sees AFib amyloidosis, look for clinical trials, and connect with others living with it — all in one place.
Open the full AFib amyloidosis hub →AFib amyloidosis is a rare condition. Also known as Familial amyloid nephropathy due to fibrinogen A alpha-chain variant, Fibrinogen A alpha-chain amyloidosis, Hereditary amyloid nephropathy due to fibrinogen A alpha-chain variant, Hereditary renal amyloidosis due to fibrinogen A alpha-chain variant. Tomeko brings together the specialists, research, clinical trials, treatments and community for AFib amyloidosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:93562 · OMIM 105200 · ICD-10 E85.0 · GARD 0019226
Start by learning the basics from an authoritative source, find a specialist or center that sees AFib amyloidosis, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat AFib amyloidosis, filtered to your area.
Tomeko shows live, recruiting studies for AFib amyloidosis from ClinicalTrials.gov on the hub.