You are not alone. Here is where to start: learn the basics, find a specialist or center that sees ADULT syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full ADULT syndrome hub →ADULT syndrome is a rare condition. Also known as Acro-dermato-ungual-lacrimal-tooth syndrome, Pigment anomaly-ectrodactyly-hypodontia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for ADULT syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:978 · OMIM 103285 · ICD-10 Q87.2 · GARD 0000384
Start by learning the basics from an authoritative source, find a specialist or center that sees ADULT syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat ADULT syndrome, filtered to your area.
Tomeko shows live, recruiting studies for ADULT syndrome from ClinicalTrials.gov on the hub.