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Adult-onset nemaline myopathy

Just diagnosed with Adult-onset nemaline myopathy?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Adult-onset nemaline myopathy, look for clinical trials, and connect with others living with it — all in one place.

Open the full Adult-onset nemaline myopathy hub →

Overview

Adult-onset nemaline myopathy is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Adult-onset nemaline myopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:171442 · ICD-10 G71.2 · GARD 0012824

Find care for Adult-onset nemaline myopathy

Authoritative references for Adult-onset nemaline myopathy

Common questions

I was just diagnosed with Adult-onset nemaline myopathy — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Adult-onset nemaline myopathy, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Adult-onset nemaline myopathy?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Adult-onset nemaline myopathy, filtered to your area.

Are there clinical trials for Adult-onset nemaline myopathy?

Tomeko shows live, recruiting studies for Adult-onset nemaline myopathy from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com