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Adrenoleukodystrophy

Just diagnosed with Adrenoleukodystrophy?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Adrenoleukodystrophy, look for clinical trials, and connect with others living with it — all in one place.

Open the full Adrenoleukodystrophy hub →

Overview

Adrenoleukodystrophy is a rare condition. Also known as ALD, X-ALD, X-linked ALD. Tomeko brings together the specialists, research, clinical trials, treatments and community for Adrenoleukodystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:43 · OMIM 300100, 302700 · ICD-10 E71.3 · GARD 0005758

Find care for Adrenoleukodystrophy

Authoritative references for Adrenoleukodystrophy

Common questions

I was just diagnosed with Adrenoleukodystrophy — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Adrenoleukodystrophy, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Adrenoleukodystrophy?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Adrenoleukodystrophy, filtered to your area.

Are there clinical trials for Adrenoleukodystrophy?

Tomeko shows live, recruiting studies for Adrenoleukodystrophy from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com