You are not alone. Here is where to start: learn the basics, find a specialist or center that sees ADan amyloidosis, look for clinical trials, and connect with others living with it — all in one place.
Open the full ADan amyloidosis hub →ADan amyloidosis is a rare condition. Also known as Familial dementia, Danish type. Tomeko brings together the specialists, research, clinical trials, treatments and community for ADan amyloidosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:97346 · OMIM 117300 · ICD-10 E85.4+, I68.0* · GARD 0009169
Start by learning the basics from an authoritative source, find a specialist or center that sees ADan amyloidosis, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat ADan amyloidosis, filtered to your area.
Tomeko shows live, recruiting studies for ADan amyloidosis from ClinicalTrials.gov on the hub.